Video Interviews

Video Interviews

Charlotte, Denmark

Charlotte was diagnosed with BHD after multiple lung collapses in the family. She discusses how it felt to find a mass on her kidney and how the treatment did not go as expected.

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Kathy, USA

Kathy was diagnosed with two genetic lung conditions. In this interview, she discusses her decision to be tested for BHD, her lung symptoms and why research and awareness of BHD are so important.

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Lenke, Belgium

Lenke was diagnosed with BHD after a collapsed lung during her pregnancy. In this interview, she discusses her pregnancy, genetic testing, her decision not to have IVF and her yearly BHD dates with her mum at the clinic.

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Cassandra, USA

Cassandra a member of the BHD community shared what it felt like to get a collapsed lung, the resulting surgery and how it affected her everyday life.

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Paije, USA

Paije was diagnosed with BHD in her 20s and required surgery for a collapsed lung. In this interview we discussed what it felt like to have a collapsed lung, recovering after surgery and USA health insurance.

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Julia, USA

Julia developed her first skin lesions in her early 20s. In this interview she discusses how the skin symptoms have impacted her both physically and mentally.

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