Video Interviews

Charlotte, Denmark
Charlotte was diagnosed with BHD after multiple lung collapses in the family. She discusses how it felt to find a mass on her kidney and how the treatment did not go as expected.

Kathy, USA
Kathy was diagnosed with two genetic lung conditions. In this interview, she discusses her decision to be tested for BHD, her lung symptoms and why research and awareness of BHD are so important.

Cassandra, USA
Cassandra a member of the BHD community shared what it felt like to get a collapsed lung, the resulting surgery and how it affected her everyday life.
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Paije, USA
Paije was diagnosed with BHD in her 20s and required surgery for a collapsed lung. In this interview we discussed what it felt like to have a collapsed lung, recovering after surgery and USA health insurance.

Lea, USA
Lea completed her first Ironman in 2021 at the age of 57. You’d never know she’d had multiple lung collapses and lung surgery and, as it turned out, a rare inherited condition.

Bob, USA
Bob was diagnosed with BHD after a routine scan accidentally picked up a mass on the top of his kidney. In this interview, we discuss how being a doctor affects his perspective on BHD.
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