Here you will find information on events relevant to BHD researchers and families.

2022 Conferences:


Festival of Genomics – 26th – 28th January, Virtual and London UK


International Rare Disease Showcase – 1st – 3rd February, Virtual

Immuno US – 7th – 8th February, San Diego USA

Crick Rare Diseases Conference – 28th February, Virtual and London UK

Rare Disease Day – 28th February, Virtual


Patients as Partners – 7th – 8th March, Philadelphia USA

Joint Dutch/UK Clinical Genetics Societies and Cancer Genetics Group Meeting – 7th – 9th March, Rotterdam Netherlands

Annual Gene Therapy for Rare Disorders – 7th – 10th March, Boston USA

European Association of Urology 22 – 18th – 21st March, Amsterdam Netherlands

Genomics of Rare Disease – 28th – 30th March, TBA


European International Kidney Cancer Symposium – 22nd – 23rd April, Antwerp Belgium


American Thoracic Society Annual Conference – 13th – 18th May, San Francisco USA


World Kidney Cancer Day – 16th June, Virtual

European Conference on Rare Diseases and Orphan Products – 27th June – 1st July, Virtual


European Respiratory Society International Congress – 4th – 6th September, Virtual and Barcelona Spain

Clinical Trials in Rare Diseases – 13th September, Virtual

European Hereditary Tumour Group Meeting – 29th September – 1st October, Virtual and TBA


EMBO Cilia 2022 – 4th – 7th October, TBA

BHD Community Symposium – 08 October 2022