Dealing with a permanent condition can often be challenging, and it is best to be well-prepared and well-informed to make the best choices for you and your family.
The following pages give a guide to the day-to-day concerns of living with BHD:
Discusses why genetic counselling might be a useful option, provides resources for finding a local genetic counsellor, and offers practical information.
Provides information about genetic discrimination, and resources for learning more about relevant legislation.
Includes practical information and resources for finding the best insurance plan.
Describes the family planning options available to BHD patients.
Offers suggestions and resources for informing others about your condition, including pamphlets to share with your doctor.
Describes how clinical trials are run, and provides information about trials that are relevant to BHD patients.
Publication date: December 2014
Review date: May 2021