Practical considerations

Dealing with a permanent condition can often be challenging, and it is best to be well-prepared and well-informed to make the best choices for you and your family.

The following pages give a guide to the day-to-day concerns of living with BHD:

Genetic counselling

Discusses why genetic counselling might be a useful option, provides resources for finding a local genetic counsellor, and offers practical information.

Genetic discrimination

Provides information about genetic discrimination, and resources for learning more about relevant legislation.


Includes practical information and resources for finding the best insurance plan.

Family planning

Describes the family planning options available to BHD patients.

Telling others about BHD

Offers suggestions and resources for informing others about your condition, including pamphlets to share with your doctor.

Clinical trials

Describes how clinical trials are run, and provides information about trials that are relevant to BHD patients.

Last Updated: May 2021
Review date: May 2024