Abstract and Early-bird deadline reminder – Fifth BHD and Second HLRCC Symposium

The Abstract and Early-bird registration deadlines for the Fifth BHD and Second HLRCC Symposium are fast approaching.

If you have data that you would like to present at the symposium, the deadline to submit an abstract is on Friday 29th March, 2013. Abstract submission guidelines can be found here and abstracts must be submitted by email to e.lesueur@agence-plb.com. Remember to state whether you would prefer to be considered for an oral or poster presentation. Preliminary information regarding the programme can be found here and this will be updated as the programme is finalised.

As in previous years, abstracts will be published in Familial Cancer (see references below). Conference abstracts are a useful way of disseminating novel data before a study is in a position to be published and to provide a snapshot of what was discussed at the meeting for those who were unable to attend. For example, an abstract was recently presented by Dr Aurelie Fabre, a Consultant Histopathologist at St Vincent’s University Hospital in Dublin, at this year’s United States and Canadian Academy of Pathology Annual Meeting. This study reviewed smoking status and compared High Resolution Computerised Tomography (HRCT) findings between five confirmed cases of BHD with pneumothorax and cystic lung disease, and six cases of primary spontaneous pneumothorax. The study found that BHD patients’ lung pathology showed the hallmarks of true cystic lung disease and was unlikely to be linked to smoking, whereas control cases showed pathology indicative of bullous emphysema, which was likely linked to smoking. Unfortunately, Dr Fabre is unable to present these data at this year’s BHD Symposium as it clashes with another conference she is attending.

The Fifth BHD and Second HLRCC conference will be held at the École de Louvre in Paris on 28th – 29th June, 2013. The symposium includes sessions for researchers on both BHD and HLRCC. Registration is now open and includes attendance to all scientific sessions and all refreshments, including the conference dinner at Le First Restaurant on the evening of 28th June. The Early-bird deadline for researchers is on Sunday 31st March, after which time the registration fee will rise from €300 to €450.

There will be a session for patients on the morning of the 29th of June, led by genetic counsellors Lindsay Middelton and Sophie Deveaux from the NIH in the USA and PREDIR in France respectively. This is a great opportunity for BHD patients to meet one another and to talk directly to experts in a relaxed and informal environment. The early-bird deadline does not affect patients, whose registration fee will remain at €50 to attend the patient session, or €100 to attend the whole conference.

Finally, accommodation information can be found here . If you would like to see the Symposium poster, please click here, and if you have any further questions, don’t hesitate to email us at contact@ BHDSyndrome.org.

We look forward to seeing as many of you as possible in Paris!


  • Abstracts of the Inaugural Birt-Hogg-Dubé (BHD) Symposium. Roskilde, Denmark. September 3, 2008. Familial cancer, 7 Suppl 1 PMID: 18704757
  • Abstracts of the Second Birt Hogg Dubé Symposium. Washington, DC, USA. April 22, 2010. Familial cancer, 9 Suppl 1 PMID: 20229310
  • Abstracts of the Third Birt-Hogg-Dubé Symposium. Maastricht, The Netherlands. May 11-12th, 2011. Familial cancer, 10 Suppl 3 PMID: 21506000
  • The Fourth Birt–Hogg–Dubé Symposium. Cincinnati, USA, 28th–30th March, 2012 Familial Cancer, 12 (1), 133-140 DOI: 10.1007/s10689-012-9528-4

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