www.bhdsyndrome.org is not a website that likes to rest on it’s laurels and to that effect it’s been regularly updated with new and original content since it’s creation, ensuring that it becomes the primary online reference site for anyone interested in BHD Syndrome.
However, we’d like to get your feedback on the scientific aspect of www.bhdsyndrome.org, to see what we’re doing right, and perhaps what we could be doing better! If you have five minutes to spare, please head on over to our survey by follwing the link below.
Researchers Feedback Survey – here
We’re also aware that non-scientists like to read this blog, and if you’d like to leave your feedback too, follow the link for the ‘Families’ section:
Families Feedback Survey – here