The Fifth BHD Symposium – 28-29th June 2013

It is our pleasure to announce the Fifth BHD Symposium which will be hosted by Professor Stéphane Richard at the École du Louvre in Paris, France on 28-29th June 2013.

As with previous Symposia, the aim is to promote a supportive international community for both BHD researchers and patients. In fact, Colledge & Solly (2012) recently discussed the BHD Symposia and how they can be used as a model for other rare disease meetings.

Details from the previous BHD Symposia can be found on our Conferences and Events page. In particular, the Fourth BHD Symposium was the largest meeting to date, which provided an excellent environment for discussions and collaborations. Further highlights from the scientific and patient sessions of this meeting can be found in our blog here and here respectively.

In the meantime, please do check for more information about the Fifth BHD Symposium as it becomes available.


  • Colledge VL, & Solly J (2012). The rare disease challenge and how to promote a productive rare disease community: case study of Birt-Hogg-Dubé symposia. Orphanet journal of rare diseases, 7 PMID: 22950632


3 thoughts on “The Fifth BHD Symposium – 28-29th June 2013

  1. Plane tickets are at the highest that time of year, ouch. I want to go though… it will be fun to meet BHD patients from Europe.

  2. Bonjour,

    je viens d apprendre que j’étais atteinte du syndrome de BHD et j aimerais assister cette conférence pour avoir plus d’informations : tout le monde peut y insister? Y aura-t-il des intervenants français?

  3. Il est possible pour tout le monde à assister au symposium BHD à Paris. La conférence se tiendra en anglais, mais il y aura cliniciens et chercheurs francaises qui vous pourrez parler.

    Meilleurs voeux,
    The BHD Foundation

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