The Fifth BHD Symposium and Second HLRCC Symposium 2013

We are happy to announce that registration for the Fifth BHD and Second HLRCC Symposium is now open, with discounted rates available till 31st March 2013. The Symposium will be hosted by Professor Stéphane Richard at the École du Louvre in Paris, France on 28-29th June 2013. Please do visit the dedicated Symposium website for more information regarding accommodation and registration options.

The rationale behind the Symposia was recently discussed by Colledge & Solly (2012), and one of the main aims of the meeting is to update the community with the latest research in Birt-Hogg-Dubé syndrome (BHD) and Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC). For oral/poster presentations, the deadline for abstract submission is 29th March 2013 and further details can be found here.

In addition, we are delighted that our keynote speakers will be Professor William G. Kaelin Jr. from the Harvard Medical School and Dana-Farber Cancer Institute in Boston, USA, Dr Bernard Escudier from Institute Gustave-Roussy in Villejuif, France and Professor Bin Tean Teh from the National Cancer Centre Singapore and Duke-National University of Singapore Graduate Medical School. Each has a particular interest in the molecular basis of renal cell carcinoma and its treatment (with more information available upon clicking their names above).

There will also be a Patient and Family session on 29th June organised by genetic counsellors Lindsay Middelton (National Cancer Institute, National Institutes of Health, Bethesda, USA) and Sophie Deveaux (Le Centre predispositions aux tumeurs du rein, Hôpital de Bicêtre, Le Kremlin-Bicètre, France). This will be a great opportunity for families to meet each other and experts in the field, in order to ask questions and share thoughts.

Additionally, a conference dinner has been planned for everyone on 28th June, so we hope to see you in Paris! In the meantime, do check back regularly with for more updates and other conferences of interest.


  • Colledge VL, & Solly J (2012). The rare disease challenge and how to promote a productive rare disease community: case study of Birt-Hogg-Dubé symposia. Orphanet journal of rare diseases, 7 PMID: 22950632


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