Call to Action Against Rare Cancers

Rare cancers are more common than you think! More than two million Europeans live with a rare cancer, and many of them are unfortunately likely to die of it.

Despite the rarity of each individual cancer type, rare cancers represent in total about 20% of all cancer cases in Europe, including all cancers in children.

A ‘European Call to Action Against Rare Cancers’ has been set-up, an international petition that urges policy-makers and all other relevant stakeholders to give high priority to quality treatment and care for patients with rare cancers. 

If you would like to sign up to this petition please go to:

If you require more information about this initiative, please visit

www.BHDSyndrome is not responsible for the content of external sites.

Leave a Reply