Today is World Pneumothorax Day. Familial pneumothorax accounts for around 10% of all spontaneous pneumothoraces. Of those that can be diagnosed with a genetic cause, BHD is the most common diagnosis but is often not thought about in the clinic. The BHD Foundation would like to change this and raise awareness of BHD and pneumothorax.
We also spoke to Cassandra a member of the BHD community about her BHD diagnosis and pneumothoraces. Cassandra explained how recurrent pneumothoraces resulted in surgery and key things to consider in the recovery process. She also discussed how she would approach discussing BHD with her daughter and the importance of information. You can watch her interview below. A transcript is also available here.