Facebook Live Discussion with Pulse Infoframe

We recently held a Facebook Live to discuss our BHD Syndrome International Registry (BIRT). We discussed the benefits of signing up to BIRT and how you can help shape the future of BHD research. We were joined by our partners Pulse Infoframe who shared information on the privacy and security of their platform. We were also excited to be able to share some of the first results from the first 2 months of data collection.

Watch the recording of it below or download the transcript here.

Join the registry by signing up here.

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