New information pamphlets have been posted online here. Four of the pamphlets focus on describing BHD symptoms and treatments. The Diagnosis Information pamphlet details how to obtain a definitive diagnosis and why this would be important for an individual and his or her family.
The Clinical Introduction pamphlet was written primarily for medical professionals. It provides a concise one-page introduction to BHD syndrome, along with journal references which can be accessed for more information. It may also be useful for anyone interested in BHD syndrome.
Please let us know if you have any questions or comments by sending an email to contact@BHDSyndrome.org.
I have bhd had my right kidney removed due to cancer. I’ve had one surgery on Rt lung and two on left. Haven’t really found a good Dr. who really gives a lot of compassion towards me as a sufferer of the disease most information I have received was at NIH in Baltimore. They are great there.