New information pamphlets have been posted online here. Four of the pamphlets focus on describing BHD symptoms and treatments. The Diagnosis Information pamphlet details how to obtain a definitive diagnosis and why this would be important for an individual and his or her family.
The Clinical Introduction pamphlet was written primarily for medical professionals. It provides a concise one-page introduction to BHD syndrome, along with journal references which can be accessed for more information. It may also be useful for anyone interested in BHD syndrome.
Please let us know if you have any questions or comments by sending an email to contact@BHDSyndrome.org.