RAREfest22: Unique Festival puts Rare Diseases into the Spotlight! 

The BHD Foundation is excited to attend RAREfest22 in November this year. We are also proud to announce we are media partners for this important event in the rare disease calendar!

Did you know that 3.5 million people in the UK are living with rare conditions? That’s around about the population of Wales. Hang on, didn’t we say RARE?! Well, with over 10,000 different rare conditions, what may be individually rare becomes collectively common. In fact, 1 in 17 of us may be affected in our lifetime so it’s something we should all be curious about. With this in mind, CamRARE is making it their priority to push rare diseases into the spotlight.

RAREfest22 is a rare disease-inspired, unique festival that will spark curiosity and challenge perceptions. It will showcase science and innovative tech while giving a voice to those living with rare conditions and their families. Taking place on November 25th and 26th, this is a FREE event for the experts and the curious of all ages. It promises a feast of expert speakers, immersive exhibits, films and art. It is a great opportunity to mix and mingle with the rare disease community. Scientists, medical professionals, companies developing tech and treatments will also be attending.

RAREfest22 highlights include:

Singing Science – Genomics The Musical –

A one-person show combining the basics of Genetics and the impacts on the rare disease community. The show provides an engaging way to familiarise yourself with key concepts – fit for all ages.

Illumina – The Cambridge DNA Journey –

A visual map and timeline of the journey from the discovery of DNA to the development and application of genetics and genomics to diagnostics and healthcare in Cambridge.

Rare Youth Revolution –

Join the RARE Youth Revolution for an immersive experience into the life of young people living with rare diseases and some invisible symptoms they experience. Talk to the team about internship opportunities for young people living with rare diseases.

Are you a person or family affected or perhaps you have a neighbour or friend who is? Maybe you’re curious about the world and love to share that with your kids? Are you a researcher based in a lab, a healthcare worker in a busy hospital? Perhaps you’re a teacher with a class full of inquisitive kids, or a student embarking on their next adventure? Whomever you are we guarantee this will be a fascinating day out and you’ll learn something new that will blow your mind. So come along, bring your friends and family and make a day of it! For the experts. For the curious. For all ages. For the whole family. For everyone. For FREE.

For more information visit the festival website. Tickets are free and available at https://bit.ly/rarefest22

The BHD Foundation aims to support, inform and connect the BHD community worldwide. We foster the relationship between patients, clinicians and researchers to build a strong and versatile community. We look forward to attending RAREfest22 and growing our network across the rare disease space.

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