We are introducing a feedback survey for BHDSyndrome.org. This survey will always be open for you to send us any comments or requests.

It can be accessed from the Features and Events, For Families and For Researchers home pages, as well as the Contact Us page.

Whether you would like to request more information, offer ideas for improvement, or just let us know you are keeping up with BHD news, please help us make BHDSyndrome.org as useful for you as possible by sharing your thoughts and suggestions here.