What is Birt–Hogg Dubé (BHD) syndrome?
BHD is an inherited condition, characterised by the development of fibrofolliculomas (benign skin tumours), pulmonary cysts and pneumothorax (collapsed lung), and predisposition to kidney cancers.
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Julia, a researcher, clinician and #BHDsyndrome patient shared her unique perspective on her BHD journey and how the #skin symptoms have impacted her both physically and mentally. Watch her interview now: https://t.co/7lXNETfzqy #RareDisease https://t.co/mK2mYlSKia
The July newsletter is out now! Volunteer to share your #BHDsyndrome story at the BHD Symposium, register for our next #meettheexpert event, find out about new BHD research and more! Read the newsletter now: https://t.co/kLBvPruUCR and subscribe here: https://t.co/f20gqLijSQ https://t.co/Hz8zH6n1Be
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