About Us

BHDSyndrome.org was created as a collaboration between the Myrovlytis Trust and the Birt-Hogg-Dubé Family Alliance.  Content has been provided by both organisations.


The BHD Foundation was founded in 2011:

1. To advance and promote research into medical and molecular genetics in order to better understand, diagnose, prevent, cure and relieve Birt-Hogg-Dubé syndrome and freely disseminate the results of such research to the public; and

2. To advance education of the public in medical and molecular genetics.

For all funding enquiries please visit the Myrovlytis Trust website

The BHD Foundation is registered in the UK with the Charity Commission, number 1122073-1.