Anna Marie, Ireland
Anna Marie was diagnosed with BHD after a history of spontaneous pneumothoraces. She shared her experiences of having a collapsed lung and recovering from COVID-19 with us.
J was diagnosed with Birt-Hogg-Dubé syndrome (BHD) 10 years after noticing the first white bump on her skin. She shared with us her BHD story from diagnosis to surgery and we discussed the importance of raising awareness
Written Interviews with researchers, clinicians and members of the BHD community