Meet the Experts

Meet the Experts is a virtual event held every 2 months to bring together Birt-Hogg-Dubé syndrome (BHD) experts and the BHD community. Genetic counsellors, clinicians and scientists from around the world share their knowledge and answer your questions about BHD.

Upcoming Event: A Year Review of the BHD Foundation and Future Projects

Saturday 22 January 2022, 17.00 – 18.00 GMT

We are excited to share with you our achievements in 2021 and the plans we have for future projects in 2022 and beyond.

The BHD Foundation (supported by the Myrovlytis Trust) rebooted its activities at the start of 2021. This included the introduction of a new staffing team, a robust and sustainable long term business plan, and a refocus on patient advocacy including an updated website and events such as Meet the Expert.

We are pleased to share our achievements in 2021 with a year end review, and to inform you of the exciting projects we have planned throughout 2022 and in to the future.

We also want to give you the opportunity to share your thoughts on what you would like to see more of in the future to best suit your needs as a person who lives with BHD.

This event will be hosted by the Trusts staff team of Anna, Katie, Jazzmin and Katie and we are all very much looking forward to meeting with you all and sharing our passion for the future of the charity and the aim of working towards a cure for BHD.

Book your tickets here


Recordings of past events:

Meet the Expert event – September 2021

Meet the Expert event – April 2021

Meet the Expert event – June 2021